1 Thing You Can Do RIGHT NOW to Help Beat MdDS

“If something’s confusing, just ask for help.” That’s the rule in my house. It’s an aide for surviving MdDS. The only problem is, if your brain is foggy then you probably don’t realize you’re confused. That’s how it came to be that I left the car running in a parking lot and walked a couple blocks away to another store. That was years ago and, while my motion symptoms have completely abated, the cognitive impairment lingers. I know I still need help.

So I’m asking. Will you help me beat MdDS?

If you’ve ever used the Foundation’s website and found it helpful, you can do something today that will ensure it remains a valuable tool for others just discovering MdDS.


The Foundation is actively recruiting volunteers to help update the list of doctors which is provided as a public resource on its website. Updating entails just two things:

  • contacting each practice to ensure they want to be included on the list
  • ensuring each listing is complete and accurate

This project is mostly just making phone calls or sending emails. Additional requirements are as follows:

  • Volunteer must be able to complete their assignment by mid-May. Deadline extended to end of June! Depending on how many sign-up to help, it may be as few as 10 or as many as 100.
  • Volunteer must be able to find missing information independently. Support Group members sometimes give recommendations without contact information. Brain fog?
  • Must be persistent and willing to make follow-up efforts.
  • Familiarity of Excel or other spreadsheet program is required.

The Foundation will provide access to a central database which volunteers will modify themselves. We’ll also provide you with a pre-written message to use when contacting practices by email, and bullet points for phone calls. We regret that we won’t be able to provide any compensation for expenses incurred, but we’d love to include your name and photo in a blog post declaring SUCCESS.

How can volunteering help beat MdDS? In addition to updating the list, we are working on an overhaul of the entire website. Our aim is to encourage medical professionals to stay on-site and learn about MdDS. Your volunteering can help ensure a high-quality list that doctors want to be included on, and a website that they find valuable. They stay, they learn, they help us. Make sense?

Please contact us if you’re ready to volunteer. Monday is Go Day!

Thank you on behalf of the MdDS Foundation,
Content Manager
mddsfoundation.org (website)
mddsfoundation.blog (this blog)
Flight-triggered MdDS • Dx’d 2007

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The Foundation Educates Doctors

Letter for Professionals (sample)The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter briefly describes MdDS, possible etiology and current research efforts.

Click to view a sample: Letter for Professionals

The second tool is our educational brochure. To supply his/her practice with brochures, simply send us your doctor’s name and address, and we’ll send them along with a Letter for Professionals. If your appointment is very soon, you may download and print the brochure by clicking on this thumbnail:

We know it seems very early, but these are great to have for June Awareness Month. Send your request today to brochures@mddsfoundation.org.

While we are happy to provide these tools and services for you, it costs about $25 to produce and send 35 informational brochures to a healthcare provider. A donation in any amount will help offset the cost. Thanks in advance.

  PayPal is a fast, safe way to make an online donation.
Donations and contributions are tax-deductible as allowed by law.

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Trampoline Days, a poem by Lois.

Lois’ case involves experiencing 24/7 music in her brain. Not tinnitus, she hears regular musical notes. This is her poem.

Spontaneous MdDS is just as frustrating as classic (motion triggered) MdDS. Please share (buttons below 👇. Click here if you don’t see them).

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