Tag Archives: awareness

The Foundation Educates Doctors

The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter … Continue reading

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⏱️ Countdown to Rare Disease Day: 35 Days

Oft-requested, long awaited… MdDS logo’d t-shirts are available again! And just in time for Rare Disease Day. Continue reading

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Raise Your Voice: #RareDiseaseDay 2016 is Coming

By definition, a rare disease affects a small segment of the population, yet combined the 7,000 known rare diseases affect 30 million people — that’s 1 in 10 of us. Many Americans do not realize how common rare diseases are and that … Continue reading

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